Neochrone- so glad you are in recovery. I know the "chemo shuffle." For guillan barre, there is a weird little dancing movement you notice as a person recovers- the person can't feel the floor, so the food is dropped ball heel ball heel, to avoid injuring heel by slamming it hard against the ground.....
chichynea- i find the B1 more important than the B12, but i take both everyday. i find i get flare ups if i run out, so i don;t run out anymore! And yes, the yoga and balance work is great.
Merpig- thank you, but really i was just happy that i was in the BEST hospital with doctors who would protect me. It was just so scary to suddenly have all these things to rule out- stroke, MS, lime disease, brain hemmoraging....when they figured out it was GBS and 80% make a full recovery, it sounded great, compared to some other choices
Glad you are starting to recover. I used to really try and talk to myself, when the pain kicked in like you are describing. I used breath exercises at really bad times- have you tried any? They help me cope with any stressful situation, so i don't get overwhelmed.
My routine was fill bucket with warm water, check temp, place feet in (or in your case hand). practice breath exercise for several minutes. then massage area. (and usually take gabapentim).
Bonnie- overuse is a huge trigger for me, too. I have found i can do pretty punishing distances on race day, but expect a lot of pain the next day. i would not routinely train that hard anymore. Still, i can log regular moderate excercise. i just have to be mindful to avoid concrete, not run, or jump, and give myself approriate rest/recovery.