Ra
Apple - no I don't mind you asking about RA at all - it is veryyyyyy frustrating to get a diagnosis! I have had it for years but until a few years ago it went undiagnosed - several years ago I was told I had fibromyalgia - so I went out and bought a book and read it - and KNEW I DID NOT have fibro despite what my doc told me. My bones and joints have hurt, throbbed, swelled, etc for years. My brother was diagnosed with RA when he was 48 (he is now 53) and finally a doc had a lightbulb moment and said - wait - that can be hereditary! So, they did the bloodwork for RA and inflammation and voila! I was totally positive (but you can have RA and have a negative blood test) - my numbers were even higher than my brother's. It has been trial and error with the meds - first prednisone which helps with an immediate flare - but you also have awful side effects - weight gain being a big one. Then I was on to methotrexate but after 5 weeks, I had trouble breathing - got off it and sure enough, I could breathe fine. Then on to Arava for 6 weeks and nada - did nothing. So now I have just started Humira injections (have only had one) every other week - will take 3 injections to know if it will work. I will tell you, it is the most painful injection I have ever had - you have to give it over 10 seconds steadily and the pain is incredible but I would do it every day if it helps the RA - I also take Tylenol #3 - 2 pills 2 -3 times a day - it takes the edge off the pain but doesn't make it go away. I hate living on pain meds but I have days where it is so hard to walk, to get up and down, and most of all the worst where I have it is in my hands and spine - found out a couple months ago I have osteoporosis and my spine is degenerating at a fast clip - so my goal is to stay active and not end up crippled in a wheelchair. So I will do whatever it takes - it is frustrating - like you, if I get on the floor, I cannot get up without DH helping me. I also can't open a jar, a can, even a diet pepsi can any more. I have to ask DH to do it all and he doesn't mind at all but I hate feeling 'helpless' at times and having to ask him to do these things for me. So, if you are having bone and joint pain (with or without swelling), ask your doc for a blood test for RA, ANA and inflammation - but keep in mind many folks have sero-negative meaning it doesn't show up in the blood test but will show with xrays, swelling, pain, etc.
On another note - I have now lost 13 lbs - hooray! Tonight we are having the cauliflower pizza for dinner - don't know how it will taste but it sure looks and smells great! Because DH is diabetic it has always been a challenge - he can eat a piece of cake, pie, etc and his blood sugar won't change at all - but give him carbs (potatoes, pasta, rice, etc) and his blood sugar goes sky high - so this is the way he HAS to eat and he is really enjoying it - but I am trying hard with all the recipes so he doesn't feel deprived. He LOVES to eat and I on the other hand, have never been hungry in my life. I don't care if I ever eat (I do drink all day - water and tea) and just the thought of food in the morning makes me gag - but my doc says my body will never lose weight 'cause it always thinks it is in starvation mode - that it hoards any food I give it 'cause it never knows when or if more food is coming. So....we are different but I am trying hard and eating 3 meals a day and staying at/under 20 g carbs per day - and I am losing inches and lbs so I will keep going!
Best of luck to you with the artheritis symptoms - your doc really needs to test you for ALL the arthritis's so you can get some help and relief for your pain.
Hope to chat with you again - it is nice to 'talk' to others who are going through the same challenges (i.e., eating, old age, menopause, etc)! Sorry - didn't mean to write an epistle!
Hugs, Cindie
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