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  #1   ^
Old Tue, Aug-15-06, 16:11
talper talper is offline
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Plan: dfsd
Stats: 160/454/150 Male 185
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Default muscle pains-fibromaylagia or not

hello, my name is tal 18 yo from israel.
i started working out in a gym(lifting weights) 10 months ago and started having pains in my shoulder, that went to the other shoulder and right wrist.
now i hape pains in different part of my body.(including legs and back, all 4 quatres)
when i started working out, i ate much new things including protein powder, tuna and sometimes milk.
i was diagnosed as fibro patient by reumathologist, after touching tender points.
i also went to another doctor not long ago that send me to bone test(i did yesterday) and some anti something blood tests...
as the pains got worse i started reading cause i didnt want to stay with they diagnose! untreatable desease that cause pains to so much!.
the fact that the pains started after working out, and that im only 18 year old male(!) which is very rare to one to have fibro, got me thinking.

ive got the a doctor in the us(by mails) and to a women that was treated by him as a candida, and said she had friends who were diagnosed with fibro, and had candida in the muscles.
i have this white/yellow coating on my tongue but conventional tests say its not candida.
i went to nethoropath who did muscle test, and found 20+ "allergies" (he calls them like that but i guess you cant be allergic to protein....).
those are:

maridians
base
amino acids
eggs
sugars
physical stress (??)
food supplements
whitness
fats from the live?
protein
milk
cheese
caseine
albomine
bacterias
home dust bacteria(bad transelation by me, "cardit" in hebrew)
weather
plants
chemicals
amalgam
moisture
tempature changes
tabbaco(my mom do smoke much)
air polution

he said i dont have candida, but i dont know.... he also said im allergic to protein. (i guess the hand fall on protein because i have trouble with it, maybe digest it)
maybe i have gluten problam?

wired list.. (: but includes protein, milk, cheeze, eggs etc....
the girl i talked to, said i dont have protein allergy(if so i will be dead, no? (: )
but i dont digest protein properly, and it maight be because a bad parathyroid.
i bought acidophilus/cal mag/betain for digestion, and plan on getting SF722 for candida and PARATHYROLATE FOR THE THYROID....

btw the conventional doctors sent me to do blood tests, and the tsh levels on both blood tests(one 3 months after the pains started and one a month ago 9 months after they did) and b12, were normal.
i only did calcium on the first one and was normal.
i did actually had a high alkp level but i was told its related to liver problam i have(zilber) that is nothing.

i would like to hear your suggestion if you dont mind.
maybe look at the allergies i have as the muscle test says?
i would love to hear your responses, as im really looking fo a solution.
its very rare in my age to have fibro and thats why i skeptic.
big thank you.

tal


*i also puted the massage in fibro and candida forums as it belongs to the 3.
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  #2   ^
Old Tue, Aug-15-06, 16:46
nawchem's Avatar
nawchem nawchem is offline
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Plan: No gluten, CAD
Stats: 196.0/158.5/149.0 Female 62
BF:36/29.0/27.3
Progress: 80%
Default

glad you're safe & well there.

Regarding the allergy tests, a true allergy is when you make antibodies to a protein, but not just any old protein. The allergy diagnosis doesn't make sense to me. Maybe just regular old allergy testing would be a better option. Unless you're allergic to the gym it doesn't seem like lifting would bring out an allergy. I haven't heard of allergies causing shoulder pain.

Is the pain that you're describing really joint pain rather muscle pain? Have you seen a sports medicine dr or a chiropractor? Maybe its something simpler. I don't know if there is a direct test for fibro, if there is I think that would make life easier for you then all these other tests.

Drs get confused if you give them too many problems to solve at once. Maybe you could work on the cause of the shoulder pain and then go on to the digestive problems. My thinking is that they are not related.
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  #3   ^
Old Tue, Aug-15-06, 16:56
talper talper is offline
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Plan: dfsd
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Default

hello!
first of all thanks for your response, but i dont think you really understood me.
the pain started in my shoulder after workouts, but now its all over the body, and less in the shoulders(more on the legs/beg/still wrist).
its fullbody pain all the time.
i thought i should stick it here too because ive been told that bad parathyroid can cause a mess with protein digestion which this can cause muscle pains(regarding the calcium in the protein that i guess if you dont digest protein right you lack in it).
but after the pains started i did a blood tests and the tsh and the calcium level were normal..
its a bet......i also posted it in fibro/candida forums here.
thank for your response.

and again-its a full body(yes! almost anywhere) pain that started gradually.
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  #4   ^
Old Tue, Aug-15-06, 17:53
nawchem's Avatar
nawchem nawchem is offline
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Posts: 8,701
 
Plan: No gluten, CAD
Stats: 196.0/158.5/149.0 Female 62
BF:36/29.0/27.3
Progress: 80%
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good clarification! I'm so sorry, you are too young to have all this on you. Hopefully someone will have some ideas for you.
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  #5   ^
Old Tue, Aug-15-06, 17:55
Nancy LC's Avatar
Nancy LC Nancy LC is offline
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Plan: DDF
Stats: 202/185.4/179 Female 67
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There are lots of things that can cause muscle pain. Does it happen in your joints or tendons at all? One thing, hope it isn't it, is Ankylosing Spondylitis. Several autoimmune diseases cause this sort of pain. Keep bothering your rheumatologist until you get it figured out. Quite often AS starts very young.

A lot of the people who have gluten sensitivity (can't eat wheat) also have a lot of joint/muscle pain.
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  #6   ^
Old Wed, Aug-16-06, 23:25
VictoriaBC VictoriaBC is offline
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Doctors told me my pain was arthritis. But arthritis doesn't show up in my ankles one minute and the next day in my wrist, or in my back for another week, etc.

I found out when I got on Armour Thyroid, many of my joint pains disappeared.

Many doctors under medicate patients because of fears of other problems. You need to find one who will give you a full thyroid screen to see if it's one of the thyroid hormones is lower than the others.

You have to find out what they mean when they say "normal". In the USA the "Normal" range has changed from .4-5 to .4-3.

Also the TSH isn't the only nor is it the best test to get when checking for thyroid.

I was told for TEN years my TSH was normal, when the other tests would have shown that I wasn't. They let me go until I was so bad and in such pain and so tired, I couldn't work, or even do much. The normal range for most is .4 to 3 Mine was 75 when I got tested AGAIN by a doctor that really did a work up on me. TSH around 1 is where my doctor keeps me.

They tend to believe that thyroid disease is a woman's disease so they don't even take many men seriously.

Also, many doctors are thinking fibro. is really a patient who is borderline hypothyroid. Every fibro patient I've met has eventually been diagnosed as hypothyroid. The docs never did a full screen and the patients had to get worse before the doctors would even diagnose them correctly.

Last edited by VictoriaBC : Wed, Aug-16-06 at 23:34.
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  #7   ^
Old Thu, Aug-17-06, 02:22
talper talper is offline
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Posts: 46
 
Plan: dfsd
Stats: 160/454/150 Male 185
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victoria, i heared about the thyroid.
my tsh level in the blood was normal... (right in the middle)
do you know the mediccne(unconventional i think) parathyroid or something like that?
i thought that my best chance is find out about things that people wasdiagnosed with fibro and evantually had them.
i found:

candida
celiac(by the comment above, just yesterday)
bad thyroid
maybe problem digesting protein(because of the thyroid maybe).
i started taking acidophilus, cal mag and betaine, and will start to treat candida with SF722 with diet and the thyroid with parathyroid.
i shoudlnt count on blood tests?
most of them were normal(including tsh and calcium...)
but if i had bad thyroid i should have seen low/high tsh levels, no?
if you know anything about celiac, you think should also do biopsy no mater what the blood test i did today for celiac say?
i mean, it still may be celiac wih normal celiac blood tests and i will just miss it?

i rather spend months trying to figure out what i have and try to solve it(look at other who were diagnosed with fibro and had x or y, and look for that x/y in myself) then do nothing and stay with pains and "fibro", am i right?
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  #8   ^
Old Thu, Aug-17-06, 09:04
Nancy LC's Avatar
Nancy LC Nancy LC is offline
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Plan: DDF
Stats: 202/185.4/179 Female 67
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Location: San Diego, CA
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Quote:
if you know anything about celiac, you think should also do biopsy no mater what the blood test i did today for celiac say?
i mean, it still may be celiac wih normal celiac blood tests and i will just miss it?

There's another whole level of problems people have with wheat that a celiac blood test or biopsy probably won't detect. That is gluten sensitivity.

You can get info here and here.

I'd advise you to give the diet a trial (4 weeks should be pretty good) and not bother with the testing because there are so many false negatives, unless you do the Enterolab testing, they're catching people with gluten sensitivity and celiacs.
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  #9   ^
Old Thu, Aug-17-06, 09:48
talper talper is offline
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Plan: dfsd
Stats: 160/454/150 Male 185
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Default

the blood tests are TransGlutaminase (IgA) Ab and immunoglubulin(something like that?)? or other things?
today i did "celiac" blood tests, but in my quest for solution, i did 5 months ago blood tests that include this 2 values, and were negative.
so if i eliminate gluten, i would see(if it is the problam) changes in a few days/weeks, right?
or i should wait 4 weeks to even see something changing?
i should also treat it as candida and parathyroid(as someone wrote here) at the same time?
the gluten idea was just an idea, and before i thought about candida and thyroid(didint do anything for those yet, only both cal mag and betaine+acidophilus).

btw, is my story can relate to gluten?
pains that started from the shoulders and after months are all over my body?
i also have a little fatigue today....
i guess i ate more gluten after i joined the gym, but did ate gluten much before i joined (:.
is it possible that it is gluten sensibilty, but the gym and the physical stress got it worse and triggered it? (including the change in diet)
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  #10   ^
Old Thu, Aug-17-06, 12:20
Nancy LC's Avatar
Nancy LC Nancy LC is offline
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Plan: DDF
Stats: 202/185.4/179 Female 67
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Progress: 72%
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Quote:
so if i eliminate gluten, i would see(if it is the problam) changes in a few days/weeks, right?

It depends. I had some changes that were noticable within a couple of days and others that took longer. Some of us notice things are still improving many moths later.

With me, my IBS symptoms disappeared within a couple of days. My 'brain fog' started to go away in a few weeks. I've been gluten free for a year now and my bones/joints/muscles are better. But for me, that is an autoimmune condition and it might be due to the meds I'm taking. However, other people have their aches and pains clear up just from going GF.

Quote:
the blood tests are TransGlutaminase (IgA) Ab and immunoglubulin(something like that?)? or other things?

Yup, those are the ones. But their are so many false negatives, I wouldn't bother. If you read that article I linked, it explains why those blood tests are not very good.
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  #11   ^
Old Tue, Sep-05-06, 14:40
VictoriaBC VictoriaBC is offline
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Stats: 100/100/100 Female 5 feet 2.5 inches
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[QUOTE=talper]victoria, i heared about the thyroid.
my tsh level in the blood was normal... (right in the middle)
do you know the mediccne(unconventional i think) parathyroid or something like that?
QUOTE]

Right in the middle isn't very good. What one lab calls "normal" might be high at another lab. You need to know your numbers. ALSO since they all depend mostly on TSH, you COULD demand a full panel to see what's really going on.

As I said someplace else, everyone I've known who was diagnosed as fribro was, within a couple of years, diagnosed as hypothyroid.
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  #12   ^
Old Wed, Sep-06-06, 01:44
talper talper is offline
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Default victoria

victoria, actualy im looking at the hypo direction now.
i did another tsh test yesterday after the doc didnt want to send me to ft3/4+ antibodies, and the level now is 3.99!!
im going today to ask for those tests from another doctor.
does your friends been treated for thyroid? did the pain disepeared?
how long did it take? and did they use armour?
i will appreciate any information you can give me,

thank you.
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  #13   ^
Old Wed, Sep-06-06, 21:40
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ButterflyA ButterflyA is offline
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Plan: My own+BFL
Stats: 295/192/170 Female 5'4
BF:46.3/33/25
Progress: 82%
Location: Michigan
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Quote:
Originally Posted by VictoriaBC
Also, many doctors are thinking fibro. is really a patient who is borderline hypothyroid. Every fibro patient I've met has eventually been diagnosed as hypothyroid. The docs never did a full screen and the patients had to get worse before the doctors would even diagnose them correctly.


That's what happened to me. I have Fibro and was told all my life that my thyroid levels were just "low end of normal" (whatever that is, I don't remember my numbers). I kept insisting I have all the symptoms my mother did of hypothyroid etc. and they kept telling me I was crazy.

Weeelll... got tested in March, and what a surprise! I'm officially one of the ones with hypothyroid! ha I TOLD them!
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  #14   ^
Old Thu, Sep-07-06, 11:27
VictoriaBC VictoriaBC is offline
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Default

Quote:
Originally Posted by talper
victoria, actualy im looking at the hypo direction now.
i did another tsh test yesterday after the doc didnt want to send me to ft3/4+ antibodies, and the level now is 3.99!!
im going today to ask for those tests from another doctor.
does your friends been treated for thyroid? did the pain disepeared?
how long did it take? and did they use armour?
i will appreciate any information you can give me,

thank you.


The top limit used to be 5 but they have lowered it to 3. So 3.99 is considered hypothyroid in most labs.

My doctor keeps me around 1 and I still don't feel my best but much better than I was. There's an excellent page for information of this kind. She interviews specialists all the time. She has forums where you can hear what other people are going through with doctors, too.
www.thyroid.about.com Start with her symptoms page.
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  #15   ^
Old Thu, Sep-07-06, 11:38
VictoriaBC VictoriaBC is offline
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Quote:
Originally Posted by ButterflyA
That's what happened to me. I have Fibro and was told all my life that my thyroid levels were just "low end of normal" (whatever that is, I don't remember my numbers). I kept insisting I have all the symptoms my mother did of hypothyroid etc. and they kept telling me I was crazy.

Weeelll... got tested in March, and what a surprise! I'm officially one of the ones with hypothyroid! ha I TOLD them!


I had nurses at my church and one doctor tell me to get my thyroid checked. I went through TEN YEARS of doctors telling me I was depressed without so much as a blood test. They would check my heart, lungs and eyes and decree I wasn't ill, that I was a depressed hypocondriac. (Although they didn't actually use the word hypocondirac, but implied as much).

I was told to quit "doctor shopping" and that I should just admit I was depressed. This is their first tactic. To get you out of the way by putting you on antidepressants.

I had been depressed after a divorce and this tired wasn't the same thing. Not at all. I didn't feel like giving up nor did I feel hopeless. I had just gotten a new job that was really fulfilling. I was on cloud 9 but so tired.

They gave me the run-around for all of the ten years. I gave up until I noticed when I ran a brush through my hair that there was a ton of hair that had come out. Now I have waist-length hair, so I hadn't noticed it before. I got so scared.

I finally went to my husband's doctor and DEMANDED a blood test. You have to play stupid with doctors or you will be labeled a hypocondriac. They (hypocondiracs) look up diseases then "get" them. *SIGH* So if you have ANY knowledge, you're labeled. Well, I was finally diagnosed. The lab average for "normal" then (7 years ago) was .4 to 4. My TSH was 75!

If one of those stupid doctors would've tested me long time before, I wouldn't have had to go through so much pain for so long.

The lack of thyroid hormone, hits every part of your body. This includes joint pain, headaches, carpel tunnel (I also had tarsel tunnel = in the foot) and I had trouble even walking.

We have to educate ourselves and find pages like Mary Shomons to know what is really going on.

Drug companies are giving huge amounts of money to med schools to teach "their" version and test results, instead of independent companies results. Doctors are propagandized early to treat people with drugs before finding out causes for things, and our health care suffers in the process. (Example: Restless leg syndrome can most often be helped by taking potassium. Especially when you're on a diet and up your water intake. Potassium is passed in the urine and when you drink more you urinate more, therefore depleating your potassium. Watch TV. Their cure is not replacing what you're short on which is causing the symptoms. Their cure is more drugs to treat symptoms only, not finding the cause. It's really sad.)

I had been treated really badly by doctors and don't want to deal with them but because of my thyroid problems I must. My health care depends on which drug company has the most interest in medical schools.

Last edited by VictoriaBC : Thu, Sep-07-06 at 11:48.
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