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  #16   ^
Old Wed, Jun-11-08, 12:40
SissyPoo's Avatar
SissyPoo SissyPoo is offline
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Posts: 685
 
Plan: Atkins
Stats: 295/230/150 Female 5 ft. 7 in.
BF:
Progress: 45%
Location: Florida
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I am on Vitamin D already and have seen no decrease in my fibromayolga.
I do water exercises because thats all I can do. we have a pool so I can use it daily.
Cannot walk very good bacause of arthritis knees so water right now water theraphy is all I can do.
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  #17   ^
Old Wed, Jun-11-08, 14:43
revcharlie
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Quote:
Originally Posted by SissyPoo
I am on Vitamin D already and have seen no decrease in my fibromayolga.
I do water exercises because thats all I can do. we have a pool so I can use it daily.
Cannot walk very good bacause of arthritis knees so water right now water theraphy is all I can do.


I cannot say anything with regard to the fibro since I don't have it, but I do have severe arthritis in my knees. Low Carb, especially the elimination of grains, has enabled me to go from almost disabling pain to being able to walk easily - even though the climate I have moved to has exacerbated the arthritis.
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  #18   ^
Old Wed, Jun-11-08, 15:18
Judynyc's Avatar
Judynyc Judynyc is offline
Attitude is a Choice
Posts: 30,111
 
Plan: No sugar, flour, wheat
Stats: 228.4/209.0/170 Female 5'6"
BF:stl/too/mch
Progress: 33%
Location: NYC
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Quote:
Originally Posted by revcharlie
especially the elimination of grains


Bingo!!

Sissypoo...how much D3 are you taking? Maybe not enough?
I take D3 2000 iu twice a day.
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  #19   ^
Old Wed, Jun-11-08, 15:26
Shorty987's Avatar
Shorty987 Shorty987 is offline
Senior Member
Posts: 314
 
Plan: Wii + CCing
Stats: 241/241/170 Female 5'11"
BF:ER! Yep...
Progress: 0%
Location: Texas
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I know this pain...ARG! I had no kind of pain before my severe back injury...The injury flared up CFS and Fibro....

My doctor prescribed Lyrica, but when I went to fill it, my insurance denied it and it was expensive. So, I never got to try it...

I do take a pain med. cocktail everyday, but when my fibro kicks into high gear, nothing helps...

May consider adding Vit D to see it that does anything...
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  #20   ^
Old Wed, Jun-11-08, 16:28
ruthla ruthla is offline
Senior Member
Posts: 2,011
 
Plan: Protein Power
Stats: 190/169/140 Female 62 inches
BF:
Progress: 42%
Location: New York
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I keep my fibro relatively under control by doing a number of different things:

1) I take cod liver oil, magnesium, and apple cider vinegar. I used to take a supplement containing magnesium and malic acid, but I lost my source for that combined supplement and I'm doing well on my homemade/less processed version.

2)I strictly avoid dairy and gluten, and less strictly avoid legumes and keep gluten free grains (rice, corn, quinoa, etc) to a bare minimum.

3) I take Ultram ER to help with the pain

3) I use a topical pain rub (containing capsicain and menthol) on my shoulders, where my pain is the worst.

4) I take 5-HTP to help me fall asleep at night (and also to keep seratonin levels high- I started this when I was weaning off Prozac years ago) and extra melatonin on nights I have a lot of trouble sleeping. Getting enough rest is vital in preventing flares, and getting rid of them when they come.
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  #21   ^
Old Thu, Jun-12-08, 13:05
Hutchinson's Avatar
Hutchinson Hutchinson is offline
Registered Member
Posts: 2,886
 
Plan: Dr Dahlqvist's
Stats: 205/152/160 Male 69
BF:
Progress: 118%
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Quote:
Originally Posted by lowcarbUgh
Well, there are people who have fibro pain that are not Vitamin D deficient, even the study reflected that.
Have you any medical scientific evidence to support that claim?

What level of 25(OH)D do you regard as optimal?

Given 125nmol/l or 50ng is the level at which the body starts to store D3 and at which human breast milk is replete with a natural level of Vitamin D3 what are your reasons for suggesting any amount lower than that is acceptable.
Quote:
If anything, the study indicates that Vitamin D deficiency makes fibro pain worse.
If vitamin D deficiency makes fibro pain worse then correcting that deficiency can only help. The only research I have seen regarding Fibro pain and vit d used Ergocaciferol and as we know perfectly well many people cannot tolerate D2 and many others cannot utilize D2. We must regard with the utmost suspicion the ethical integrity of any research done on Vit d that uses an unnatural, synthetic, form of the vitamin when there is cheaper more effective more reliable and safer alternative.

The case against ergocalciferol (vitamin D2) as a vitamin ...
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  #22   ^
Old Thu, Jun-12-08, 13:14
SissyPoo's Avatar
SissyPoo SissyPoo is offline
Senior Member
Posts: 685
 
Plan: Atkins
Stats: 295/230/150 Female 5 ft. 7 in.
BF:
Progress: 45%
Location: Florida
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I am taking Lyrica and on pain medication to. I soak alot in a hot bath to every evening. That helps me so so I can sleep at night better.
I also take arthrotec for arthritis. I just started on the Lyrica last week so I am hoping it will help me. Can't reall tell any difference yet but I hope to soon.
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  #23   ^
Old Thu, Jun-12-08, 13:16
Hutchinson's Avatar
Hutchinson Hutchinson is offline
Registered Member
Posts: 2,886
 
Plan: Dr Dahlqvist's
Stats: 205/152/160 Male 69
BF:
Progress: 118%
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Quote:
Originally Posted by Judynyc
Bingo!!

Sissypoo...how much D3 are you taking? Maybe not enough?
I take D3 2000 iu twice a day.
4000iu daily meets your body's basic daily needs. Together with regular sun exposure this should be sufficient to attain and maintain your level above 125nmol/l. But without regular full body (or as near to as possible) sun exposure it is likely that only 100nmol/l or 40ng would be achieved. This is still a tad under the amount at which your body actually starts to store D3.

Your savings accounts will/can only grow when you earn more daily than you spend daily.

Your body can only store vit d AFTER it's daily basic needs have been met.

If you are currently below optimal and take only sufficient to meet your daily needs it will take several months to raise your status so that sufficient is available for storage. Those who continue to take less than their bodies daily needs will continue to have lower levels than needed. There are over 900 different Vit d receptors waiting for adequate Vit d availability in order to function. Not only that but your vit d status controls the absorption of calcium/magnesium and inadequate levels of these also upsets hundreds of different enzyme reactions. Getting your Vit d level correct will speed up the correction of of magnesium deficiency.
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  #24   ^
Old Fri, Jun-13-08, 06:21
quietone quietone is offline
Senior Member
Posts: 1,271
 
Plan: original 72 Atkins
Stats: 201/177/142 Female 65 inches
BF:44/44/25
Progress: 41%
Location: Northern Virginia
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Well, I know my new fibro dr is checking Vitamin D and said deficiency can be a cause for fibro pain. I also know someone who does have fibro and her dr. put her on 50,000 iu once a week (started out twice a week) and she has noticed a huge improvement. Hers was actually low.

Also, if you live in the US, anywhere above Atlanta, GA or its equivalent going further west, you can not possibly get the correct sun exposure. Also, with people like me (freckles and fair skin) who avoid the sun for fear of sun burn, then chances of having Vit D deficiency is more probable.
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  #25   ^
Old Fri, Jun-13-08, 07:44
Nancy LC's Avatar
Nancy LC Nancy LC is offline
Experimenter
Posts: 25,866
 
Plan: DDF
Stats: 202/185.4/179 Female 67
BF:
Progress: 72%
Location: San Diego, CA
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Make sure you get vitamin D3, not D2. Usually when they give you such enormous doses it is D2 which doesn't really work.
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  #26   ^
Old Fri, Jun-13-08, 16:26
SissyPoo's Avatar
SissyPoo SissyPoo is offline
Senior Member
Posts: 685
 
Plan: Atkins
Stats: 295/230/150 Female 5 ft. 7 in.
BF:
Progress: 45%
Location: Florida
Default

I do get the sun exposer. I sit out by out pool most everyday day and read and sometimes have lunch. I love the sun and am in it alot but I wear sunscreen all the time. Does that stop any absorbsion of the sun rays?
I have a good tan to.
I grew up on the water and have always been in a boat or in the pool swimming. So I feel I get enough sun exposure.
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  #27   ^
Old Fri, Jun-13-08, 16:36
Judynyc's Avatar
Judynyc Judynyc is offline
Attitude is a Choice
Posts: 30,111
 
Plan: No sugar, flour, wheat
Stats: 228.4/209.0/170 Female 5'6"
BF:stl/too/mch
Progress: 33%
Location: NYC
Default

Quote:
Originally Posted by SissyPoo
I do get the sun exposer. I sit out by out pool most everyday day and read and sometimes have lunch. I love the sun and am in it alot but I wear sunscreen all the time. Does that stop any absorbsion of the sun rays?
I have a good tan to.
I grew up on the water and have always been in a boat or in the pool swimming. So I feel I get enough sun exposure.


Are you taking 4000 iu daily of D3? We keep asking you this and you have not answered yet.
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  #28   ^
Old Fri, Jun-13-08, 16:42
lowcarbUgh's Avatar
lowcarbUgh lowcarbUgh is offline
Dazed and Confused
Posts: 2,927
 
Plan: South Beach
Stats: 170/132/135 Female 5'10
BF:
Progress: 109%
Location: Flip-flop, FL
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Quote:
Originally Posted by Hutchinson
Have you any medical scientific evidence to support that claim?


I read the study and it distinctly said that some of the participants were not deficient in Vitamin D. It certainly can't hurt to try it as it is cheap. But fibro is a syndrome and no one knows if it is exactly the same thing from person to person. It would be nice if Vitamin D were a miracle cure, but I don't believe it is.

This book was wriiten by an M.D. with fibro:

http://books.google.com/books?id=fj...umbnail#PPP1,M1

and recommends many different supplements to try because he believes that there is a wide variation on what causes fibro in the first place. Some people also have associated conditions that make fibro worse: arthritis, stenosis, Epstein-Barr antibodies.

I think that makes sense.
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  #29   ^
Old Fri, Jun-13-08, 17:20
revcharlie
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[QUOTE=Shorty987]

My doctor prescribed Lyrica, but when I went to fill it, my insurance denied it and it was expensive. So, I never got to try it...

QUOTE]

My sister has fibro and Lyrica isn't approved in Canada yet. Her doctor told her that it is a next generation Neurontin so she is going to try that. Having read the information available, I think Lyrica probably has fewer side effects, but Neurontin may do the trick.
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  #30   ^
Old Sat, Jun-14-08, 09:47
quietone quietone is offline
Senior Member
Posts: 1,271
 
Plan: original 72 Atkins
Stats: 201/177/142 Female 65 inches
BF:44/44/25
Progress: 41%
Location: Northern Virginia
Default

Yes, sunscreen does interfere.

You need to go out for about 20 minutes with your body exposed with no sun block.
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