Ok everyone i have been doing alot of Reserch into Fibromyalgia and and found very Good stuff that i never know about all as we all know that the NHS cant do a thing for us!! please be open minded when you read all my Reserch and please read all of it!!! OK HERE GOES !! ok if anyof you are on the SCD diet and its really helping ya fibro pain please let me know?? and anyother diets also would love to hear from you all!!!!!!!!!!!!
http://members.aol.com/SynergyHN/ look at this
http://members.aol.com/SynergyHN/allergy22a.html

http://www.breakingtheviciouscycle....ibromyalgia.htm

Ok this is the 1st thing that i came across please read all of it ! with a OPEN MIND! and study them all!!

http://www.scduk.co.uk/find.htm this link is the Uk site for the SCD .


http://www.remedyfind.com/review_lo...review_id=23449 here is another testimony of SCD.

http://www.ctds.info/fibromyalgia-diet.html ok heres another one for you to read please read it!

http://www.amazon.co.uk/exec/obidos...9383220-9409520 Ok this one the lady has fibromyalgia and she wrote this book and the lady please read the Reviews there are over 10!! of them

http://www.immunesupport.com/librar.../e/1/T/CFIDS_FM this link has more info about marys book and info on FM, Many people have overcome their FM symptoms by changing their lifestyle and diet. Mary Moeller, author and spokeswoman on FM, now enjoys a state of remission from her FM symptoms by making a few changes in her lifestyle. To reach this ideal she advocates eliminating 4 foods completely from your diet (Mary Moeller’s Fibromyalgia Cookbook.)
http://curezone.com/diseases/fibrom...a_Solutions.htm ok this link has marys story and has other Fm testimonies aswell please read them
ok this one i couldnt belive what i was hearing as that is so bad crazy world we live in huh? http://joi.ito.com/archives/2002/10...ad_for_you.html
ok with this link go down the botton of the page and read fibromyalgia diet http://www.psyweb.com/FMS/fibromyalgia.jsp
ok another link here for you please read all of it! http://www.ei-resource.org/Articles/cfs-art14.asp
ok the last one http://www.biblelife.org/fibromyalgia.htm please read this OH and i have email this man who wrote this and hes sister has fibromyalgia and she is on the diet and her fibro is not there hardly!!
i have some very good books that you should look up ok heres the list lol
The fibromyalgia Cookbook by Shelley Ann Smith She has fibromyalgia!!
Fibromyalgia simple relief though movement by stacie L. Bigelow, M.A She has fibromyalgia!!
Breaking the vicious cycle: intestinal health though diet .
Mary moellers fibromyalgia cookbook. She has fibromyalgia!!
The fibromyalgia Nutrution guide using nutrition and other lifestyle factors to over come fibromyalgia by mary moeller,Joe M Elrods She has fibromyalgia!!

http://www.healthy-living.org/html/fibromyalgia.html

http://www.remedyfind.com/review_lo...review_id=47358

http://www.ei-resource.org/allergies.asp
http://www.ei-resource.org/Articles/general-art02.asp please read all of this as you will be

http://www.allergyclinics.co.uk/cfs.htm please read!!!!

http://www.fibromyalgia-diet.ws/

http://www.mckeithresearch.com/ please read this one you will be
please read all of this http://nancymarkle.com/fibro.txt
please be open minded http://www.reliv.com/healthstories/gauthierCAN.htm
http://www.reliv.com/healthstories/buglewiczUS.html
http://www.reliv.com/ambassadorbios/ambassadorDavis.htm this is for lupus hope i spell that right!!
http://www.bionetics.co.uk/bionetics/me_approach.htm
please read this its very good!!!!!!!!!!!!!
http://www.bionetics.co.uk/Fibromyalgia.htm


Originally Published In

The American Naturopathic Medical Association Monitor & The International Association of Therapeutic Specialist's Quarterly

Natural Interventions for People with Fibromyalgia
Robert J. Thiel, Ph.D., N.H.D., Director of Research, Center for Natural Health Research www.healthresearch.com

Abstract: The purpose of this preliminary trial was to determine how often natural interventions could result in symptomatic improvement for people with fibromyalgia. Interventions included dietary restrictions, nutritional supplementation, and bioelectrical stimulation. All forty participants reported improvement (P < 0.0001); improvement was noted in 95.3% of symptoms monitored. Possible food intolerances were found in 92.5% of the participants.

Thiel, R. Natural Interventions for People with Fibromyalgia. ANMA Monitor 2(2):6-8, 1998
Thiel R. Natural Interventions for People with Fibromyalgia. IATS Quarterly 2(6):1, 1997

INTRODUCTION

Fibromyalgia is an underdiagnosed syndrome that affects between 2-4% of the population [1]. Although its cause is uncertain, genetic factors, stress, insomnia, dietary factors, immune disfunction, a virus, hypometabolism, and calcium disorders have all been speculated as possibly having a role [1-3]. It has been described by this researcher and others as chronic fatigue combined with a nearly overwhelming pain [1,4]. Symptoms vary, but common symptoms include widespread pain (97.6%), tenderness in multiple points (90.1%), fatigue (81.4%), morning stiffness (77.0%), sleep disturbances (74.6%), paresthesias (abnormal burning/ prickly sensations (62.8 %) headaches (52.8%), anxiety (47.8%), prior depression (31.5%), and irritable bowel syndrome (29.6%) [5]. Although fibromyalgia is a multi- symptomatic syndrome, this researcher has found that most people with it will complain most about the one symptom that affects them the most: common are overwhelming fatigue, overwhelming pain, insomnia, or stomach/digestive distress.

According to Julian Whitaker (M.D.) [2] and others [1], conventional medicine often knowingly treats fibromyalgia with ineffective drugs. So it is not surprising that research has shown that most people with fibromyalgia seek help from non-medical sources [6-7].

SELECTION CRITERIA

Adults were eligible for inclusion in this trial if they came to our office, agreed to provide (and did provide) feedback, signed a consent agreement, and indicated that they suffered from fibromyalgia or symptoms of fibromyalgia. Forty people were eligible and participated : 35 were female and 5 were male.

METHOD

After completing the selection documentation, all subjects were interviewed for approximately 45 minutes. All subjects were then assessed using Reflex Nutrition Assessment (RNA). RNA is a non-invasive technique used to assess nutrition status by observing the responses of muscles under externally provided human force (it is similar to other forms of muscle testing [8]. Performing RNA for people with fibromyalgia normally consists of three assessments. The first assessment is to determine if a reflex indicates a nutritional need (by observing a reduction in muscular strength); the second is to determine which nutritional intervention may help fit that need (by observing an increase in muscular strength); the third is to assess for possible food intolerances (observable muscular weakness when exposed to the food is considered to indicate a possible intolerance). Reflexes associated with fibromyalgia include heart (when major fatigue and circulation are issues), adrenal (when stress and fatigue are issues), sleeping/headache (when insufficient sleep is involved), calcium (when pain is a major factor), thyroid (when mood and circulation are issues), and parasite (when digestive issues are involved). Participants who appeared to be intolerant to one or more foods were advised to avoid them. Participants were advised to consume an average of three tablets per day of one or more nutritional supplements. Although actual supplements varied, fortified bovine heart glandulars were used for heart reflex issues; herbal glandular or flaxseeds, B6, and other herbs for adrenal reflex; soluble calcium, magnesium, potassium, and phosphorus or pineal glandular for sleeping; soluble calcium formula and/or fortified food chondroitin-sulfate-A for calcium reflex, fortified thyroid bovine glandular for thryoid reflex, and fortified herbs) for parasite reflex; some with gastro-intestinal upset also underwent bioelectrical stimulation (to stimulate immune function, see zappers) with a zapping unit. Headache reflexes normally responded to thyroid or adrenal support as indicated. Other products were used if they reflex checked as better. Monitored symptoms included muscle pain, hip/joint pain, headaches, fatigue, gastro-intestinal upset, insomnia, and depression /anxiety. Subjects were interviewed at approximately 20 day intervals to determine changes.

RESULTS

All participants (100.0% orally reported improvement within 60 days; the P value of improvement was <0.0001. Ages ranged from 24 - 83; the mean participant age was 52.3 years. The average participant had problems with 4.3 symptoms; improvement was noted in 95.3% of symptoms monitored. By symptoms, improvements was noted in 93.8% with muscular pain, 89.3% with hip/joint pain, 92.9% with headaches 100.0% with fatigue, l00.0% with gastro-intestinal upset, 92.9% with insomnia, and 96.2% with depression/anxiety/. The data showed that 97.4% with muscular and/or hip/joint pain noted some pain reduction in either or both. It should be added, that although paresthesia was not a monitored symptom, the majority of those who complained of it noted improvement. Age and gender did not appear to play any significant role in improvement. This preliminary trial did not attempt to differentiate degrees of improvement.

Possible food intolerances were found in 92.5% of the participants with bovine dairy the most prevalent (45.0)%, followed by caffeine (35.0%), whole wheat (12.5%), oats (l0.0%), chocolate (5.0%), and canola oil (2.5%).

DISCUSSION

Until relatively recently, fibromyalgia was considered a psychiatric disorder (or secondary to a psychiatric disorder) even though it is now considered to be a rheumatic disorder [1,8]. It is believed by many that some metabolic disorder is probably involved [1-3]. This investigator would concur. Calcium metabolic disorders are primary in many. Since calcium can impair magnesium absorption [9], this investigator suspects that the opposite is probably true: this could explain why some show some pain relief from taking magnesium combined with malic acid [2,10] (though this investigator feels most would do better by avoiding all bovine dairy while taking soluble calcium).

Thyroid issues, though often underdiagnosed [11], are frequently seen [3]. This investigator's other research on chronic fatigue [12] and pain relief[13] has demonstrated that people with fibromyalgia can positively respond to nutrition based interventions as well as to bioelectrical stimulation when gastro-intestinal upset is involved [14]. Since many with inflammatory bowels suffer from pains in joints which can be due to reactive arthritis caused by bacteria [15], it is possible that those who underwent bioelectrical stimulation may have had benefits in joint pain relief due to immune system stimulation [14]. This investigator wonders if this is why bioelectrical stimulation of a different sort, electroacupuncture, has been helpful for pain relief for people with fibromyalgia [16]. It is medically felt that fibromyalgia acts like an infection, though a medically diagnosable infection is rarely found [1].

This may be because of the relatively high incidence of food intolerance in people with it or because the infections associated with gastro-intestinal upset are not always found [17]. This investigator believes that certain food intolerances (such as bovine dairy and oats) can give the appearance of being infectious agents to the body (though this is not usually the case with caffeine). Exercise has been reported to be of value to people with fibromyalgia [1], including even aerobic exercise [18] (though caution is strongly advised before engaging in any strenuous exercise). In addition to the obvious benefits of exercise, this researcher wonders if some of the benfits my be due to heavy perspiration reducing the toxicities associated with food intolerances.

Dealing with people with fibromyalgia is both difficult and professionally rewarding. It is difficult, because many of them are desperate having been either ignored (prior to their diagnosis) or not properly treated [1,2]: this leads to frequent follow-up phone calls and some of them questioning your recommendations while they are improving (not all improve dramatically, especially at first). It is professionally rewarding, because major improvement is often seen in their symptoms while their outlook changes from being suffering semi-pessimists to improving optimists. (One of the youngest participants was somewhat this way. The good news was, although she had minimal improvement within 60 days, long-term interventions finally resulted in substantial improvement.) This researcher enourages doctors and health researchers to be willing to challenge long-standing misconceptions regarding fibromyalgia and to work toward cooperative interventions to help these people improve and lead as normal lives as possible.

REFERENCES
[1] Nye D. Fibromyalgia--A Physician's Guide. Internet: 222.alternatives.com/cfs-news/fm-md.htm Dec. 14, l996
[2] Whitaker, J. Four things to do for fibromyalgia. Health & Healing 6(9): 3-4, 1996
[3]Lowe, J. A new explanation of fibromyalgia: The hypo-metabolism hypotheses. In: Clinical Pearls in Nutrition and Preventative Medicine, ITServices: Sacramento, l997
[4]Clauw, D. The pathogenesis of chronic pain and fatigue syndromes with special reference to fibromyalgia. Medical Hypothesis 44(5): 369-378, 1995
[5] Wolfe, F., et. al. The American College of Rheumatology l990 criteria for the classification of fibromyalgia: Report of the multicenter criteria. Arthritis & Rheumatology 33: l60, l990
[6] Dimmock, S., et. al. Factors predisposing to the resort of complementary therapies in patients with fibromyalgia. Clinical Rheumatology 15(5): 478-482, l996
[7] Pioro-Boisset, M. Alternative medicine use in fibromyalgia. Arthritis Care Reviews 9(1): 13-17, l996
[8] Dunne, F. and Dunne, C. Fibromyalgia syndrome and psychiatric disorder. British Journal of Hospital Medicine 54(5): 194-197, l995
[9] Shils, M. Magnesium, In: Modern Nutrition in Health and Disease, 8th ed.: 164-184 Lea & Febiger, Philadelphia: l994
[10] Russell, I., et.al. Treatment of fibromyalgia with Super Malic: A randomized, double-blind, placebo controlled, crossover pilot study. Journal of Rheumatology 22(5): 953-958, l995
[11] Sawin, C. Subclinical hypothyroidism in older persons. Clinics in Geriatric Medicine 11(2): 231-238, l995
[12] Thiel, R. Chronic fatigue assessment and intervention: The result of 101 cases.. ANMA & AANC Journal 1(3): 17-19, 1996
[13] Thiel, R. Musculoskeletal pain relief for people with arthritis, lupus, and fibrmyalgia. ANMA Monitor l(1): 8-10, l997
[14] Thiel, R. Efficacy of bioelectrical stimulation for people with chronic infections. Journal of Alternative and Complementary Medicine. In Review, l998
[15] Hazenberg, M. Intestinal flora, bacteria, and arthritis: Why the joint? Scandinavian Journal of Rheumatology 24 (Supp. 104): 207-211, l995
[16] Deluze, D. Electroacupuncture in fibromyalgia: Results of a controlled trial. British Med. Journal 305: 1249-1251, l992
[17] Clarke, H. The Cure for All Diseases, New Century Press, San Diego: l995
[18] Wiggers, S., et.al. Effects of aerobic exercise versus stress management treatment in fibromyalgia. Scandinavian Journal of Rheumatology 23: 77-86, l997

The Center for Natural Health Research supplies research and other items for health care professionals interested in natural interventions.

For additional information check out http://www.healthresearch.com. This research for doctors and other health care professionals. Thiel is not a medical doctor. None of this research is medical advice, nor should it be construed as medical advice; nor is any of this information specific for any individual.

Copyright 1997/1998/2000 by Robert J. Thiel, Ph.D., N.H.D. All rights reserved.

« Last Edit: Apr 12, 2006, 7:35am by nicole »

Hi Fibroart

Thanks for finding all these different links. I was just wondering about one other aspect that I am very concerned about. Below is a quote from one of the research articles you have posted (dont' know how to do the quote properly, hope it is OK like this):

"Thyroid issues, though often underdiagnosed [11], are frequently seen [3]. This investigator's other research on chronic fatigue [12] and pain relief[13] has demonstrated that people with fibromyalgia can positively respond to nutrition based interventions as well as to bioelectrical stimulation when gastro-intestinal upset is involved [14]. Since many with inflammatory bowels suffer from pains in joints which can be due to reactive arthritis caused by bacteria [15], it is possible that those who underwent bioelectrical stimulation may have had benefits in joint pain relief due to immune system stimulation [14]. This investigator wonders if this is why bioelectrical stimulation of a different sort, electroacupuncture, has been helpful for pain relief for people with fibromyalgia [16]. It is medically felt that fibromyalgia acts like an infection, though a medically diagnosable infection is rarely found [1]."

The last sentence here is the one that I find so concerning. I was diagnosed with CFS/Fibro over 3 years ago and nothing I did, change in diet, acupuncture, the various suggested supplements, etc, made any real difference to me. I had times of remissions and relapses and was resigned to the fact that this would be for the rest of my life.

In December last year I started to look into the symptoms of Lyme Disease which is a bacterial infection transmitted by ticks, and after a lot of research and help from another forum, I finally got tested. I tested positive. I don't recall a tick bite nor the characteristic rash but I still have the disease.

As I didn't get the (antibiotic) treatment for it, I now have late stage Lyme Borreliosis which is difficult to treat BUT it can be treated. The symptoms are identical to Fibro. I was lucky to test positive, some people are too ill to produce antibodies and therefore their tests come back negative (that's why I included the above quote).

Please, please include Lyme Disease in your research. There is lots of info on the net regarding treatment, the different tests available and their downfalls, etc.

Best wishes

Michaela

well i have come across alot of stories when it comes to illness and i didnt know that lyme lillness was the same Symptoms?? as fibro!!! what kinda diet did u go on? and how long for? how did u become to be in remission then? and how long for? am on something thats very good got rid of my fatige and headaches and fibro fog as well they have testoimies on there for Lyme and fibromyagia which very good Results!!!! please be open minded http://www.reliv.com/healthstories/gauthierCAN.htm
http://www.reliv.com/healthstories/buglewiczUS.html
http://www.reliv.com/ambassadorbios/ambassadorDavis.htm this is for lupus hope i spell that right!!
http://www.bionetics.co.uk/bionetics/me_approach.htm
please read this its very good!!!!!!!!!!!!!
http://www.bionetics.co.uk/Fibromyalgia.htm

ohhh try the SCD diet

Yes, I was quite shocked, too, when I found out that the symptoms are the same and that I had a lot of them. Some researchers say fibro IS Lyme, although I believe there can be different causes for fibro but I am no scientist. Now I won't even say I have fibro anymore. When anyone asks me, I say I have Lyme Disease.

Luckily a low carb diet is the correct diet to go on and I have been doing this for all the time I have been ill. It has been trial and error to find out which foods give me an upset stomach or nausea and I now eat things that don't make me ill. No real weight loss though, as you can see from my stats. The weight loss will occur once I start on antibiotic treatment to kill the bugs and my body is strong enough to cope.

Last year in July and August I felt fine and hoped that I was getting better but my symptoms returned slowly and I went back to square one. I have no idea why I was feeling better though. My symptoms come and go and change. I have started to write down my symptoms daily to see if there is some kind of pattern.

And yes, you are absolutely right. Diet and supplementation (I take lots of different things) are very important because they help the body to fight whatever is making you ill but in the case of Lyme it is not enough, sadly, which I know now. In the three years of not being treated, the bugs have been allowed to multiply without my immune system knowing that they are there and that's a horrible thought.

It makes me sad to think that there could be lots of people that have been told there is no cure for their illness or 'it is all in their minds' and in reality they have an infection and need urgent treatment. If I can make people aware of this disease and save one person from years of suffering, I would be very happy.

That's why I am preaching about it, it really isn't to criticise anything you have written if I have come across that way.

Best wishes

Michaela

Dont worry you havent offened me in any way what are the Symptoms? of lymes illness you have?

Hi
That's OK then.

I started off having a very sore throat, stiff neck, low fever and extreme fatigue followed by a severe sinus infection. My symptoms after this were
fatigue and loss of stamina
anxiety
nausea and upset stomachs
hangover feeling in the morning
muscle spasms
joint pain, especially in lower back, wrists, shoulders and neck
shooting, stabbing pains in the legs, mainly at night
problems remembering names, general memory problems, using wrong words
heart palpitations
spatial awareness problems, I would knock into things like door handles
morning stiffness in back and jaw

I think these are the main ones, there are some other odd ones, too.

Initially I was diagnosed with fibro when a chiropractor checked the tender points and I was very sore on most of them. Also saw a doctor at the local hospital who confirmed the diagnosis after looking at my symptoms. That was in 2003. It was only when I talked to a friend who I hadn't seen in many years and who has Lyme Disease that I realised how similar our symptoms were.

What do you think? Do you have similar symptoms, too?

Michaela

Lyme disease is brought about by having a bit from an infected tick.

My mother had this (the real thing) and her symptoms were nothing like mine (I have fibro) and with antibiotic treatment she got over it.

Fibro is usually initiated by some incident (not always)...you have a predisposition for it and then bam!! Mine was brought on by a car accident...never had symptoms of it it before then.

Not only that, if Lyme isn't treated it gets very serious and then tests can prove whether or not it's Lyme.

My rhuemy says that women with Ankylosing Spondylitis often times present symptoms that are more like fibromyalgia.

Yes, I have the real thing, too, after being misdiagnosed with fibromyalgia for years.

Although I don't remember a recent tick bite (lots of people with Lyme don't), I have been bitten as a child in our garden. I come from Germany from an area where every third tick is infected with borrelia and other co-infections.

There are different species of ticks and they cause different problems. If you get bitten in the US, you may have different symptoms to someone bitten in Europe. There are different manifestations of Lyme, I have the neurological form. Tests are very unreliable, often giving false negative results. Lyme Disease can mimic diseases like MS, Fibro, CFS, Alzheimers and others.

I had AS excluded from the diagnosis, although it was suspected at first.

I think the question is still out there what causes fibro. I believe there are different causes, mine was a tick bite that went unnoticed and I am grateful that I finally know what made me ill and how to get better. There may be others in the same boat.


www.ilads.org is a good website for further info if anyone is interested.