Quote:
Originally Posted by fibroart
hello everyone i joined up to this site only last night
abit about me ok am from the UK and i have had fibromyagia for 10 years now and am housebound simple things in life make me bedridden
i have only found out that diet can help fibromyagia a bit late i know
the Doctors cant do thing for me full stop i have seen 2 Rheumatology doctors and they have told me that they cant do a thing for me at all
i have been Referd to 2 pain ciinics and have been truned Down for treatment and i wanted to know if a FM diet helps anyof you guys?(which diet are you on?) and what have you all eliminated from your diet? and do you have to stay on that diet for 4ever? and what kinda food makes fibromyagia pain come back? have anyof you had a food intorlance test done? and what was the out come of it? am very lost as i have done a lot of Reserch on it and everyone is saying a diffrent things so am lost has going on a diet made any of you go into Remission?
i have been looking into the SCD aswell any one got any views on it? any good? and should i cut out Rice from my diet aswell as wheat/flour/any form of wheat?
Do you guys cut out red meat? and dairy products/potatoes tomatoes/peppers/eggplant as thesse have been said that they make fibro worse!!! i have started my diet 2 days ago now and am getting withdraw symptoms i think they are??? am getting headaches and going to the Loo alot and the 1st night i started i was getting weak arms all night long they keept on going and weak leg yestoday aswell is this normal??? and do you know how long it lasts?? well i hope you can help me
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Hi:
First of all I have to see everything is so individual with diet, illness and the person. What works for me, might not work for, but I'm willing to share my info.
I have fibro too. I was just diagnosed in March and have have it almost three years. I even went through a pregnancy with it. I thought I was going to die and no one knew why or what was wrong. I was even beginning to think people and medical professionals throught I was nutso.
I have been following low carb off and on over the years and have had success in between two pregnancies. When I got started again in May '05, my losses have been so slow and stopped in Nov. I have no lost anything since.
I was still having really bad symptoms even while eating lc and supplementing with vitamins, minerals, and herbs for normal maintenance. My symptoms continued to get worse, so to make a long story short I got to the doctor and he diagnozed along with saying there wasn't much he could do. I was also turned down for accupuncture through the hospital. It sure can make a person feel helpless.
I know it's my responsiblity to do all I can to make myself better, so I continue to follow the lc diet, avoid wheat, oats, rye, and barley. I don't eat much red meat only because it's not as good in Sweden as in America and it's expensive to boot. I plan to lc for a lifetime, because I feel so much better while following it. I eat peppers, tomatoes, and eggplant. I notice that I feel more pain if I eat wheat and feel really crappy if I eat sugar or other starches (that's not even counting when I had fibro).
I have also changed my supplementation regime and have seen a little improvement over the last month.
There are no gaurentees with fibro, you can get completely well, become worse, or have flare ups. You just never know. I am definitely hoping to get over mine, so I can function on a more normal level.
You can have what is called induction flu, which comes on by drastically reducing carbs. You can have headache, trots, aches, rashes, tiredness and weakness. Most people combat this by drinking water and taking supplements. This usually passes within a week.
Here is a
linkto a thread where I asked for advice, maybe you can gleen something from there and then you can cruise by my journal if you're interested. Just click on the journal button at the bottom of my post. Come visit if you like.
I wish you the best on regaining your health.