Hi there...
I had my hysty when I was 26, I am now 53! However it was after my hysty when I noticed things were not quite right in my bladder, twinges at first!! Then my hubby and I went out on a country drive and coming home I asked him to burn it fast!! I needed to go, in the end I started crying the pain was that bad! His reaction was, "it can't be that urgent" Hence, we had to stop along side the road, the pain was incredible, to say the least!! As time went by the pain increased, intercourse, pressure to go and do my business, drinking tea, wine anything that was acidic, it affected my bladder!! Many, many tests i.e. water works, never an infection but my GP always put me on the old favourite, antibiotics! One another occasion, emergency Dr said you need antbiotics, I said "no I'm not taking anymore" He yelled at me and said "I'm the Dr here and I make the decisions and I am telling you that you have a Urine or Cystitis infection!!" I left and rang back for my results, he spoke with me and said "no infection" I laughed and said "I didn't take em!!!" He understood...
The pain is excruciating, I had Dr after Dr look at me, not one new of this disease, it's not naked to the human eye, the bladder needs to have a biopsy taken. I had so many dilations of the bladder, so many operations, nearly 30 to be exact!! No joke this is all true!! As I said I was 26 when I first started with my symptoms by the time I was 46 I was crawling on my hands and knees the pain was so bad. The Specialist (Gynea) kept dilating and dilating until one day I was so sick that when my daughter spoke to me I threw something at her, I couldn't respond normally, I was so ill. My husband carried me to the car, down to the emergency Dr and thank goodness they had a Locum working the nasty one was on holidays. He took one look at me and said I am in my last month of studying to be a Urology Surgeon, you my dear have a disease in your bladder, and he gave me the news that I would lose it.
He wrote to the Gyne Specialist for a biopsy to be performed, but he refused and said there was ntohing wrong with my bladder!!
It was then I rang my original Dr who's surgery was too far away as I moved, the travelling was a pain, when she went through all of her notes, she apologised, she said of the 50 Urine tests, not one had an infection and she said she should have realized then something was seriously wrong. I was 42 then, I fought to keep my bladder until I was 46, but by then it shrunk and could only hold 60 mls, it vertially dried out!!
She rang the Professor of Urology, I was admitted after hundreds of times, I spent so many days in hospital, I was sick, the pain in my bladder was excruiating, hence a biopsy was performed and he came in to tell me that I was to lose my bladder...
I know this is a long story, I'm sorry but your symptoms sound like mine, the only way to diagnose this disease is for a piece of lining to your bladder needs to be tested, do it now, because I went through hell, intravenous drips into my bladder for years, catheters, pethodine by the gallon, nerves cut in my bladder to try and save it, you name it, they did it to me!! So please ask your Urologist if you could have a biopsy performed on your bladder.
The disease is either known as Hannah's Ulcer or Interstitual Cystitis, you stand up and be the boss, make sure they do not do to you as they did to me for many, many, years! It's not worth the pain, thank god for that practising surgeon (Locum), he was my angel...
Please let me know how you got on, and if you receive this note, I am on Yahoo and msn...
Bye Nancye...
PS I hope you can understand this all, a bit long winded but it might help you diagnose a disease if it's there!!!
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