My husband and I have been struggling with his ME/CFS for years, and he struggled alone for years before that. Despite some progress with the antibiotic protocol, (similar to Lyme disease) we have coasted to a plateau when a post here made me aware of the MTFHR mutations that are just being studied.

Well, we finally got our results back. He's got it! The A1298C.

This is the one implicated in what's called Neuro-Immune diseases, so it explains so much!

It took a while to hunt down an actual protocol, since this is so new and so variable, but here it is:

Methylation Protocol for ME/CFS

We have brought our wonderful doctor on board and he's ordered further tests. This detox can lead to Herxheimer reactions which we are very familiar with from the antibiotic therapy, so I urge everyone to take the same precautions:

http://en.wikipedia.org/wiki/Jarisc...heimer_reaction

This is such thrilling news! Finally, something to point to on a lab printout and say, "SEE!"