Apparently a product from spain called recuperation is also good. Are you guys familiar with the Marshall Protocol?

hello am sorry i have never heard of it there are so many out there it does get soo if u get where am coming from lol

The Marshall Protocol involves taking a particular drug called Benicar, avoiding all sunlight, bright lights and foods and supplements containing vit D and taking antibiotics as well I think. It is used for particular diseases mainly caused by bacteria including Lyme Disease which I have. There is a public MP website that answers all the basic questions about it.

Personally I don't like the sound of it as I love being out in the sun in the garden.

Regards
Michaela

Dont sound like fun to me! lol i wouldnt given go near that one lol
what treatemnts are u on for ya fibro? and are they helping?

Yeah, there are good reasons to be very cautious about marshall protocol. I just mentioned it because I think fibro, Lyme, CFS etc. all are reallymore or less the same thing fundamentally and respond to similar treatments. I'm not advocating the marshall protocol (I don't do it). Sorr, I can't find a link for recuperation. Do a search for Dr. Teitelbaum. I think it's one of the products he uses.

http://www.recuperat-ion.com/

Some think it's great, some not.
Also:
http://www.alfredblasi.net/eng/experiencia/ingles.HTM

umm i think am going to go for the Gual protrocol as i have been looking into it and have found hope in it and 1000s of testiomies as well if anyone wants links then let me know?

Guai does sound promising

yeah i have joined up with the offical Uk yahoo support group and they are so friendly and very supportive and a member of the group is giving her old copy of the book she has ( cos i dont have any money lol) of the Gualfenesin protrocol so thats very kind of her!
here are some testiomies from the team of Dr R paul st amond he had fibromyagi him self and so do all of hes team
www.fibromyalgiatreatment.com/team.htm

The recuperat-ion people do a really hard sell and it seems expensive. I love that guai is over the counter and inexpensive. The other thing that my doc mentioned to me is D-ribose, which is also pricey, although it is available from swanson vitamins ... so I am going to try it too. I would love to be able to get my daughter to take something that doesn't take a lot of life changes. I think she has FM and she isn't sure.

I'm still very new to this but have been reading - books on guai and also the older books by Deryl Starlanyl (sp?)

I am excited to see that there is a whole forum about FM here! I have had it suggested by a spedcialist that I may have FM; but from my reading I don't see how you tell for sure - is it from the mapping?

Thanks...

hello there,
well the best book u need to read is called What your Doctor may not tell you about fibromyalgia by Dr paul st amand am starting gaui very soon! And there are lots of support groups online for gaui and there is a over 95% success rate for gaui treatment
Diet is very important and Exercise for fibromyalgia
there is also a book called Fibromyalgia simple relief though movement by Stacie L BIGELOW ,M.A
You get Diagnosed from a doctor i live in the Uk u see

Only in the US . In Canada, UK, Australia and elsewhere, it's available as a single drug by prescription only. It can be found in OTC cough preparations, but those contain other ingredients which are undesirable for long term use.

Dr. Devin Starlanyl wrote favourably about guai in her first edition of Fibromyalgia & Chronic Myofascial Pain Syndrome: a survival manual, pub. 1995. However, in the 2nd edition, pub. 2001, she's a little more cautious., pointing out that "symptom reversal" does not mean cure. She also disagrees with St Amand's assertion that fibro, chronic fatigue, vulvar pain, candida yeast illness and myofascial pain are all the same disease.

You may wish to read Dr John Lowe's thoughts on guai therapy for fibro .. http://www.drlowe.com/QandA/askdrlowe/guaifenesin.htm. That site is a good one for overall discussion about fibro, diagnosis, and especially the hypothyroid link. You definitely should have your thyroid checked as part of the work-up to determine whether or not you have fibro.

Besides Devin Starlanyl's books (I highly recommend you try to get the more recent editions), you may also find Leon Chaitow's book, Fibromyalgia and Muscle Pain: Your Self-treatment Guide to be very informative and balanced. Dr Chaitow is a naturopath/osteopath in the UK; he's written several books on alternative therapies for fibromyalgia as well as candida illness and others. Your library probably has these and other books avaible for you to borrow, so there's nothing to buy .

Just want to point out that this is primarily a low-carb forum, and this section is for members to discuss low-carb as it relates to fibromyalgia.

If you choose to do the guaifenesin protocol, please make sure that you're being followed and supervised by a qualified health practitioner such as a doctor or naturopath. Do not try to treat yourself or simply follow the advice, however well-intentioned, of strangers on an internet message board. Even in diagnosing fibro, there are often overlapping conditions that require medical treatment. Be especially cautious if you are female of child-bearing age . The guai protocol requires you to be on the drug for the rest of your life, and there have been reported cases of birth defects in babies born to women who took guai during the first trimester (when they may not have known they were pregnant).


Doreen

Wow, there you go again Fibroart, you can't even give correct supporting info. Pray tell us where you found that 95% success rate? If I recall correctly, Dr. St. Amand doesn't even claim that high a success rate! (If he does, he's leaving something out!)
I was reading this thread and saw that you weren't even on the Protocol in April? How can you say at works then? How do you know? Most of my friends who started Guai at the same time as me, over a year ago, still aren't well enough to honestly be able to say that. (One still can't work, the other is in constant pain and getting new, worsening symptoms, how's that for Guai working?) I live close to Dr. St. Amand's office, and went to a support group by the illustrious Claudia Marek, and I will tell you that out of 12 or so people, there was only one person who said Guai was working for her, besides Claudia of course, but she's kind of biased now isn't she?
Dr. St. Amand will try and tell you that you're supposed to be feeling ill because you're cycling, but don't we with Fibro kind of "cycle" anyhow? I know I haven't been ill the entire time since I've been diagnosed.

I'd suggest trying a more legitamite resource, like Dr. Jacob Teitelbaum's site. He is open to a wide range of treatments, some even considered holistic by some.

He treats infections, hormonal problems, sleep issues, and pain until he has it all under control.


OH! And btw, a note to whomoever it was that said they had to stop using a certain nailpolish, you really didn't have to, nailpolish is okay, doesn't have to be sal-safe, ask the great and powerful Guai Group. (Been there, done that.)

Ooops, sorry, didn't see that earlier! Thanks for the info from Dr. Devin Starlynl's (sp) book, as well as the referral to the site about thyroid. I'm truly finding that DHEA is helping with my energy levels, stress tolerance, mood, and other things, though not all, so I'm very interested in reading anything that has to do w/hormones.

Now, back on topic. Has anyone had success in treating their IBS with low carb? I tried the "Hypoglycemia Diet" (Dr. St. Amand's) while doing the Guai treatment to try and increase my energy, to no avail, I even gained weight on it! I know people who it did help though...

Isn't that the primary ingredient in Mucinex?